If you’re new to FPIES, you probably haven’t tried too many solid foods yet. It’s hard to know what to try when your child has reacted so badly to foods that seemed so safe. If you’re not sure what to try check out this link: https://spreadsheets.google.com/spreadsheet/viewanalytics?formkey=dEZMYWh2ZXdhZVQyQ3UtbUFMWFgybXc6MQ .
It shows the results of an unofficial survey of several parents of children with FPIES. Look for the foods that a lot of them have tried but haven’t reacted to. I find it helpful to look at it when I don’t know what to try next. Of course keep in mind that every FPIES child is different. One kid might be okay eating apples and peaches while another won’t be. But it’s nice to have some sort of reference since even most doctors can’t tell you what to try.
I also recommend checking out the online FPIES forums. The parents there can be very helpful when you’re trying to figure out whether your child is okay with a new food. It’s nice to have support from people who know what you’re dealing with. My favorite is the forum at Baby Center: http://community.babycenter.com/groups/a4859345/fpies_food_protein_induced_enterocolitis_syndrome
There is also group on Facebook you can check out. For information on FPIES in general go to the FPIES Foundation’s page: http://www.thefpiesfoundation.org/
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